Share Your Story: Caroline’s Curve
Blog written by Caroline’s mom, Christina, of Dallas.
“What’s that little lump on her back?” This is how Caroline’s congenital scoliosis journey began, when she was almost nine months old.
We noticed a small lump on her back, around her spine, when she was leaning forward in the bathtub one evening. This discovery led to a lot of internet research and had me in tears, wondering what it could be.
Her nine-month check-up was approaching, and we had her pediatrician take a look at her back. After his examination, he referred us to a pediatric orthopedic specialist
We were able to get in rather quickly and it was then that she was diagnosed with congenital scoliosis. Caroline had a 24-degree curve, plus a single hemivertebra at L2. When the doctor laid out the X-rays, we could immediately see that her spine was curved. We left that appointment in tears, shocked and terrified by all the things we had just been told. We were completely overcome with worry for our sweet girl and what her future would look like. He then referred us to the experts at Texas Scottish Rite Hospital for Children. Living in Dallas, we were familiar with the hospital.
Every single person we saw had a smile on their face and was so friendly to Caroline and our family, putting us at ease.
They took more X-rays of her back and chest, weighed and measured her, and then we waited to see Dr. McIntosh. As soon as she walked in, she told us that Caroline’s case was “not that bad.” She must have seen the extreme concern on our faces because her saying that immediately made our worries go away.
She confirmed that it was congenital scoliosis with a single hemivertebra at L2. The hospital has a X-ray machine where the child stands upright rather than laying down. This method gives a more accurate reading. Here, her curve was only 19 degrees.
We also learned that since her hemivertebra was lower in her spine, it was not connected to nerves and there was no need to worry about possible nerve issues. She advised us to get Caroline’s heart and kidneys checked out since a large percentage of congenital scoliosis cases can also have heart or kidney issues. Her heart and kidneys ended up being just fine! We were so thankful.
We continue going for check-ups to monitor Caroline’s spine. We’ve been told there is a tiny chance she may never need surgery, but if she does, we feel confident in the doctors at Scottish Rite Hospital and no longer worry about our sweet girl.
We have had such a wonderful experience and want to help others have the same opportunity. Caroline and I make children’s bracelets and we donate 100% of the proceeds back to the hospital.