Get to Know our Staff: Ryan Calococci, Orthotics & Prosthetics

Get to Know our Staff: Ryan Calococci, Orthotics & Prosthetics

What is your job title/your role at Scottish Rite for Children?
I am an orthotics and prosthetics technician. It’s my job to make all the orthotic and prosthetic devices for our patients. I also repair broken or worn devices.

What do you do on a daily basis or what sort of duties do you have at work?
I spend half my time fabricating prosthetic devices in the lab outside the main building, and the other half is spent in the Orthotics & Prosthetics main lab on the Lower Level. My duties include filling plaster models, thermoforming plastic and making orthotic devices. I also assist practitioners with repairs, and I run the seven-axis robot carver where we prepare our models for scoliosis braces. Our technician team fabricates thousands of orthotic and prosthetic devices every year!

What was your first job? What path did you take to get here or what led you to Scottish Rite?
For my first job, I was a cart attendant and grocery bagger at Kroger when I was 16. I like to say that Scottish Rite found me. I lost my job in 2008 when the economy collapsed, and I was desperate to find another job. I heard about an entry level position at the hospital through a friend of the family, and I applied. I quickly fell in love with work, the hospital’s mission, and amazing people here. Sixteen years later, and I have certifications in both orthotics and prosthetics. I love the work I do!

What do you enjoy most about Scottish Rite?
I love the culture here – everyone is friendly, helpful and devoted to the mission. I also really love the camps and trips the hospital organizes for our patients. I have had the honor and privilege of attending a few summer hand camps and, most recently, the Amputee Ski Trip. They are truly transformative for the kiddos! 

Tell us something about your job that others might not already know?
Every prosthetic device we make is completely custom-made and will only fit the child it’s made for. It also takes a few weeks from casting to fitting for each device.

Where is the most interesting place you’ve been?
I hiked a trail called Angel’s Landing at Zion National Park in Utah. It was the scariest thing I ever, did but the view at the end was worth it!

What is your favorite game or sport to watch and play?
I don’t really play any team sports, but I do enjoy mountain biking and watching football. Go Cowboys!

If you could go back in time, what year would you travel to?
I would go back to when the pyramids were being built just so I could see how they did it.

What’s one fun fact about yourself?
I have an identical twin brother.

Let’s Be More Specific About “Non-Specific” Back Pain

Let’s Be More Specific About “Non-Specific” Back Pain

This article was originally published in a 2021 newsletter for the Pediatric Society of Greater Dallas. Written by physical medicine & rehabilitation physician Jason R. Petrasic, M.D., FAAPMR

Watch Petrasic give a lecture on this topic a Navigating Back Pain in Adolescents.  It should be no surprise that prevalence numbers for back pain in adolescence steadily increase with age and are nearly identical to that of the adult population by the age of 18. However, young patients and their parents are often surprised when formal evaluations of their insidious onset back pain symptoms yield unremarkable results. Then comes the common “diagnosis” that seemingly no one wants to hear: non-specific back pain. However, arguably this is not a diagnosis at all. The term suggests to the patient that there is no identifiable cause of their symptom. As a patient, or a parent, I want to be able to attribute the symptoms I’m feeling to a diagnosis and know there is an available treatment for my diagnosis. Furthermore, I want to know the underlying cause of my symptom or diagnosis so that I can potentially try to prevent its recurrence in the future. Clearly there are countless cases where a vague symptom or complex of symptoms is not associated with any obvious underlying diagnosis, but my suggestion is that adolescent non-specific back pain is more often a diagnosis of myofascial pain syndrome.
 
Pain is a subjective symptom, and, therefore, is influenced by a multitude of factors including actual tissue injury, previous experiences, mental health disorders, sleep quality, and central processing of pain signals. All of these can influence the intensity and duration of pain experienced from any underlying cause. In the absence of identifiable tissue injury, consider the possibility of unidentifiable tissue injury (i.e., at the cellular level) like the concept of delayed onset muscle soreness (DOMS) which is the typical muscle soreness, or pain, suffered after an intense bout of exercise in individuals not acclimated to such workouts. There may be a source of pain that is not a result of obvious structural injury and is not observable on currently available imaging modalities, nor is there a routinely used lab study to identify or screen for it. However, there may be a source of stress and tension on the supportive spine muscle(s) in a growing skeleton with disproportionally lower muscle strength, muscle endurance, and flexibility (or any combination of the three) involving key muscles that when the stress exceeds the back’s ability to support it the affected area becomes painfully symptomatic. This is most typical of myofascial pain syndrome where the problem lies at the muscle cellular level. Insidious onset neck, upper, or lower back pain are the most common presenting complaints with symptoms usually being described as intermittent and exacerbated by prolonged sitting and/or standing/walking. Rest or lying down often alleviates symptoms. Common exam findings include full range of motion of the affected area with or without tenderness to palpation, and bilaterally or asymmetrically tight hamstrings (best tested by checking popliteal angles with patient examined in the supine position with ipsilateral hip flexed to 90deg) and/or hip flexor muscles (best tested by performing the Thomas test).

Watch Petrasic demonstrate a thoracolumbar exam in an adolescent.

It is still key to consider more serious structural problems with the spine elements or muscles (or with other adjacent organ systems) when a thorough history, physical examination, and available lab or imaging studies suggests them, but when it is believed or confirmed that those problems are absent or much less likely, then myofascial pain syndrome should be more strongly entertained. This type of diagnosis offers both a long-term treatment, but often more importantly it also offers reassurance that something more serious is not developing or lingering. It should also be noted that myofascial pain syndrome can affect an adolescent competitive athlete seemingly just as easily as their more sedentary counterparts. Physical activities or competitive sports do not necessarily equate to adequate resistance training and stretching as is often assumed, especially in active, growing adolescents. Often kids involved in athletics put even more demand on their “core” and supporting musculature further exacerbating the deficit. A well-rounded, consistently, and persistently performed home exercise program is key to treating this problem along with emphasizing continued exercise and physical activity, and in some cases arranging for supplemental guidance by a physical therapist knowledgeable in spine/back care can help to optimize and accelerate recovery of more constant or severe symptoms.

Comfort level in diagnosing musculoskeletal conditions can often be understandably uneasy when musculoskeletal complaints are being fielded by primary care providers or specialists in other unassociated fields of practice. Myofascial pain syndrome is merely being suggested as a potentially likely benign diagnosis for an otherwise very common complaint that offers improved clarity to families and may help limit anxiety about what may be going missed or undiagnosed.

Learn more about Spondylolysis: A Common Cause of Back Pain in Young Athletes.

Scottish Rite For Children Neurologist Steven Sparagana Honored With Legacy Fund

Scottish Rite For Children Neurologist Steven Sparagana Honored With Legacy Fund

SCOTTISH RITE FOR CHILDREN NEUROLOGIST STEVEN SPARAGANA HONORED WITH LEGACY FUND
Fund will support tuberous sclerosis complex research
 
May 17, 2024 – The TSC Alliance® announced it has established the Steven Sparagana Legacy Fund to honor the upcoming retirement of Steven Sparagana, M.D., who served as Tuberous Sclerosis Complex (TSC) Clinic Director at Scottish Rite for Children in Dallas for 24 years and as a professor in the department of neurology at UT Southwestern Medical Center.
 
Tuberous sclerosis complex is a rare genetic disease that affects people at all stages of life. TSC causes tumors to grow in different organs and can impair their function, primarily the brain, heart, kidneys, skin, eyes and lungs. Nearly one million people worldwide are estimated to be living with TSC, with approximately 50,000 in the United States. Although there is no cure, there is hope. Research has proven that early diagnosis and intervention(s) are key for optimizing long-term outcomes. Advancements in research continue to deliver new and improved therapeutic options.
 
Steven Sparagana, M.D., with patients Gabby and Izzy, age 7, at an appointment for their ongoing treatment of tuberous sclerosis complex.
“The TSC Alliance is thrilled to create this fund to recognize Dr. Sparagana’s multiple contributions to TSC clinical care and research,” said Kari Luther Rosbeck, TSC Alliance President & CEO. “He also served on our organization’s Professional Advisory Board, and his early research helped create the TSC Natural History Database, which captures patient data to document the impact of the disease on a person’s health over his or her lifetime. The database now houses information on more than 2,600 people with TSC. His impact on the TSC community has been tremendous.”
 
In 2004, Dr. Sparagana’s original $141,307 grant from the TSC Research Program at the U.S. Department of Defense was the genesis of the TSC Natural History Database. He has since served as a member of the TSC Alliance’s Natural History Database/Biosample Repository Steering Committee, and Scottish Rite for Children was one of the original pilot sites for the database. His impact, particularly as it pertains to the Natural History Database and pivotal clinical trials, has been instrumental in improving the quality of life for individuals with TSC.
 
“Dr. Sparagana’s forward-thinking vision coupled with his kind and collaborative style enabled him to be a contributor and leader of multiple clinical research projects,” said Steven L. Roberds, PhD, TSC Alliance Chief Scientific Officer. “Additionally, in 2012, he chaired the development of a new section of TSC clinical consensus guidelines focused on the importance of integration of care to treat the ‘whole person’ living with TSC.”
 
The Steven Sparagana Legacy Fund will provide an ongoing source of revenue in support of the Natural History Database and Biosample Repository as a tribute to his contributions to the creation and ongoing success of these invaluable tools. Supporters can easily contribute online.
 
“I am grateful to the TSC Alliance for this honor. It has been a privilege to serve children, families and the community affected by tuberous sclerosis complex,” said Dr. Sparagana. “The Natural History Database and Biosample Repository have provided substantial contributions to TSC basic science and clinical research, and I wholeheartedly support these important endeavors. I am also thankful to Scottish Rite for Children, which has generously supported the hospital’s TSC Clinic for more than 30 years.”

Get to Know our Staff: Peggy Duguay, Radiology

Get to Know our Staff: Peggy Duguay, Radiology

What is your job title/your role at Scottish Rite for Children?
I am the assistant director of Radiology, and I help manage the Radiology department.

What do you do on a daily basis or what sort of duties do you have at work?
Every day in Radiology is different. I help manage the Radiology department, which includes staff scheduling and payroll, managing equipment including maintenance/testing, state inspections and act as a liaison with our staff physicians and clinical staff. I also help cover many areas including doing X-rays for patients, working the front desk and file room duties.

What was your first job? What path did you take to get here or what led you to Scottish Rite?
My first job was as a dental office receptionist. I learned about radiology technology as a career option through my college advisor and applied for the radiology program. I worked at UT Southwestern for 17 years before applying and getting hired at Scottish Rite for Children. 

What do you enjoy most about Scottish Rite?
I love working with the children and their families. It is a very special and rewarding experience each day. I am blessed to have such a wonderful opportunity to work at Scottish Rite and continue to grow and learn. Also, I love the amazing Radiology staff I work with, as well as the wonderful Scottish Rite staff throughout the hospital.

Tell us something about your job that others might not already know?
I started out at Scottish Rite as a radiology technologist, then became the PACS Administrator, and am now assistant director of Radiology.

Where is the most interesting place you’ve been?
I did a seven-country tour in 1998 throughout Europe. It was so much fun being able to visit so many different countries that I never thought I would get to travel to.

What is your favorite game or sport to watch and play?
Football–I have been a big Dallas Cowboys fan since the 80s when I watched the games with my dad. I also root for all the Texas teams…Dallas Mavericks, Texas Rangers and Dallas Stars! 

If you could go back in time, what year would you travel to?
I lost my dad in 2001. I miss him so much and wish I could travel back in time to see him again.

What’s one fun fact about yourself?
I have an identical twin sister named Patty. We have confused many people over the years including many people from Scottish Rite. We always still spend a lot of time together. Being a twin is so much fun!

Beating Scleroderma and Actualizing Invention With Grit

Beating Scleroderma and Actualizing Invention With Grit

Previously published in Rite Up, 2024 – Issue 1.

Lino is an inventor who is set on changing the world. “Problems without solutions inspire me to invent,” he says. “I’ve been tinkering with stuff since I was little, but I didn’t realize all this problemsolving was called inventing until I was in the fourth grade.” That was when Lino, of Frisco, invented the String Ring, an adjustable band worn as a ring that protects your finger while playing a stringed instrument. Lino played the cello and wanted to find a way to keep his fingers from blistering without changing the sound. “When you finally solve a problem that is personal to you and that affects a lot of other people, it’s the best feeling in the world,” he says.
 
His mother, Sharon, says that Lino has never met a challenge he does not want to conquer. “Lino is kind, smart and positive, but ‘grit’ is the perfect word for him in everything he does — at school, in sports and through his journey at Scottish Rite,” she says. “How he handled his diagnosis is how he handles his inventions.”

When Lino was 12, his hands began swelling. He could not make a fist, and when it got cold, his hands changed colors, turning red, even purple. His pediatrician referred him to Scottish Rite for Children where he was evaluated by orthopedic hand surgeon Chris Stutz, M.D. Dr. Stutz found nothing wrong with the bones in his hands but suspected a rheumatic condition and referred him to rheumatologist Lorien A. Nassi, M.D.

Dr. Nassi diagnosed Lino with juvenile systemic scleroderma, a rare, chronic autoimmune disease in which the immune system causes inflammation and tissue changes that lead to a tightening and thickening of the skin. The condition affects approximately 3 per 1 million children. There is no cure, and it can progress, affecting the internal organs, such as the heart, lungs and kidneys.

“It felt like an out-of-body experience,” Sharon says. “We walked in with a healthy child, and all of a sudden, we got a diagnosis of something we didn’t understand.” Dr. Nassi and her team, including a psychologist and a child life specialist, consulted with the family, explaining that Lino would need to take a weekly injection. “They told him not to search it on Google,” Sharon says, “that he could take the day off from school, but he was like, ‘No, I have to go to school. I have to give a presentation.’”
 
Lino began taking injections as well as receiving physical and occupational therapy to increase manual dexterity, flexibility and range of motion. “The hardest part was getting the injections and then learning how to administer them myself,” Lino says. “I didn’t like needles, but I got over that, and I feel better now that I’m doing it myself because I feel more in control.”
 
After four years, Dr. Nassi is tapering off the medication. “Lino has had a remarkable trajectory,” she says. “Unfortunately, so often rheumatology diagnoses are only seen as severe, lifelong conditions with significant limitations. I love that Lino shows us that even some of the more serious rheumatologic diagnoses can have great outcomes.”
 
Lino hopes to finish treatment this summer. “I’m lucky they caught it so early, and now it’s better,” he says. “I’m really thankful for that.”
 
“We will be forever grateful to Scottish Rite, Dr. Nassi and Dr. Stutz for diagnosing Lino right away,” Sharon says. “Thanks to them, against many odds, Lino has no moresymptoms and will be medicine-free, an outcome that is as rare as the disease itself.”

But, Lino does not want his success story to be a rarity. He is pursuing becoming a scleroderma advocate who shares his story, creating awareness to raise funds for research, and one day, a cure. He aims to ensure that other kids find the right doctors, get diagnosed early and know that there is hope.

Scleroderma has not stifled Lino’s creativity. By the time he was in eighth grade, he had masterminded four inventions. His most recent — Kinetic Kickz 2.0 — has a patent pending. An improvement on his original Kinetic Kickz, 2.0 is a shoe with a generator built into the sole that collects energy from walking, allowing the wearer to power a device with their shoe. The idea came to him one day after school on the soccer field. He needed to call his mom to come pick him up, but his phone was dead, and he did not have a charger. “I spent months trying to light an LED bulb to prove that I could create enough energy to charge something,” he says.

Invention Convention Worldwide recognized Lino’s genius, awarding him first place in his age group for Kinetic Kickz 2.0 at the 2021 Globals competition presented by Raytheon® Technologies, now RTX. TIME magazine noticed and selected him as a 2021 Kid of the Year finalist.

The 17-year-old continues to improve his inventions as he conceives of new ones. His Scottish Rite journey has inspired him to consider medical-based inventions, and he is debating whether he wants to be a doctor or an engineer. “I’m not sure yet,” Lino says, “but I am sure of one thing. I want to be a world-changer — someone who helps make the world a better place through their actions, or for me, through my inventions.”

Read the full issue.