Our doctor referred us to a specialist, where we learned that Ella most likely had a rare heart condition called Tetralogy of Fallot, in addition to clubfoot. In order to confirm the heart condition, her little heart needed more time to grow and develop. That waiting period was very stressful, but after a couple of weeks and many prayers, we learned that Ella had a healthy heart. She still had clubfoot, so we then went to a different specialist in Oklahoma City. As soon as she was born, we started her clubfoot treatment. I wanted to be on top of things and give her the very best possible outcome. Immediately following her birth, Ella’s left foot was casted for four weeks. She then had an Achilles tenotomy procedure, where the Achilles tendon was cut so the ankle
During this time, I remember feeling a lot of guilt because our doctor would tell my husband and me that we needed to be doing more. More stretching and more exercises with Ella. My mom intuition kicked in, and I had a bad gut feeling that something just wasn’t right. Her little foot literally wouldn’t stretch anymore, so I consulted with a physical therapist who confirmed my feelings. Ella underwent another Achilles tenotomy in January of 2019, followed by a tibial osteotomy in December of 2019. During the tibial osteotomy, her tibia was cut and repositioned. This caused Ella to be in extreme pain. We did not have a very good experience at that original hospital, and that was when that I started to research other hospitals and learned about Scottish Rite for Children.