Kenneth, also known as “KJ,” of Longview, Texas, is 6 years old and full of life. He plays baseball with The Miracle League of East Texas and spreads happiness wherever he goes. Though he needs assistance to walk, not much slows him down. Thanks to Scottish Rite for Children, he is gaining independence with the support of his custom hip-knee-ankle-foot orthosis (HKAFO).
Born with spina bifida, KJ has been a patient at Scottish Rite since he was 6 weeks old. His mother, Melissa, remembers how her family’s connection to the Scottish Rite Masons made Scottish Rite the clear choice for KJ’s care. “We knew from the very beginning that it was the right place for him,” Melissa shares. “Scottish Rite has always felt like family to us.”
KJ’s treatment has included years of physical therapy and a series of orthopedic orthoses to support his growth and mobility. He has used a wheelchair, ankle-foot orthoses and now a customized HKAFO to get around. Pediatric orthotist and prosthetist Reagan Bratten, C.P.O., L.P.O., specializes in fitting custom braces and supportive devices. She notes KJ’s determination drives his progress.
“The HKAFO is like an external Iron Man suit,” Reagan explains. “It locks out his knees and feet, giving him the support he needs to stand and walk with a walker. KJ has the core and hip strength, and this device helps him use it to move forward.” Above all, his enthusiasm stands out. Reagan says, “He never gives up, and he always brings joy and determination to every step he takes.”
Though his progress hasn’t always been easy, KJ’s persistence shines through. “At first, when he began using the HKAFO, completing a single lap was a big achievement,” Reagan recalls. “Now, he’s up to four laps, and I’m just there to cheer him on.”
KJ’s dedicated family drives two and a half hours to Scottish Rite. The care they receive between appointments makes all the difference. “We do not live close, so having a team that responds quickly whenever we have a question is so helpful,” Melissa says. “Knowing we have that kind of support, even from far away, gives us so much peace of mind.”
For KJ, walking with his HKAFO means more than just mobility. He grows in independence and can see eye to eye with his friends. “Scottish Rite gives children back their childhood and makes possibilities happen,” Reagan says. “KJ is proof that with the right support, kids can do amazing things.”
