Hand Camp Around the World

Hand Camp Around the World

Scottish Rite for Children is world-renowned for its patient-centered care for children with orthopedic conditions, and our Center for Excellence in Hand is committed to caring for children with hand and upper limb conditions.

Focused on providing innovative treatment to help patients live active and independent lives, Occupational Therapist and Certified Hand Therapist Amy Lake, OTR, CHT, recently shared her knowledge at the 2023 World Symposium on Congenital Malformations of the Hand and Upper Limb. Working with a team from around the world, Lake served as co-chair. She shared her research and insight surrounding patient involvement in Hand Camp as well as the impact therapeutic camps have on children with hand differences. 

For more than 20 years, Scottish Rite has created a therapeutic and safe environment for patients with congenital hand differences through Hand Camp. Hand camp provides an opportunity for children with upper limb differences and their families to meet others facing the same challenges while enhancing confidence and self-esteem.

Lake’s research evaluates the positive benefits these camps provide to this patient population. Results showed that the participation in camp enhances their self-esteem and overall hand function, which promotes participation in extracurricular activities.

Her published study and passion for treating the whole child is inspiring hospitals all over the world to start their own hand camps. We are so proud to have Amy as part of our team sharing the incredible things happening at Scottish Rite.

15th Year Scottish Rite for Children Ranked No. 1 in the Region and Among the Best in the Nation by U.S. News & World Report

15th Year Scottish Rite for Children Ranked No. 1 in the Region and Among the Best in the Nation by U.S. News & World Report

For more than a century, Scottish Rite for Children has defined greatness in pediatric orthopedic research, education and patient care. U.S. News and World Report has once again ranked Scottish Rite No. 1 in the Southwest Region, which includes Oklahoma, New Mexico, Arizona and Texas, rounding out at No. 4 in the specialty in the country.
 
We are privileged to help our patients, and for the past 15 years, this exceptional ranking continues to reflect our commitment to excellence and to providing world-renowned care to our patients and their families. Our multidisciplinary team of doctors, nurses, therapists and specialists collaborate to create a customized continuum of care for each patient and family. Our staff has cared for more than 360,000 patients, but not one is treated like a number.
 
Scottish Rite researchers have not only discovered and mapped genes associated with adolescent idiopathic scoliosis and other conditions but also have invented and advanced revolutionary medical devices resulting in more than 50 patents secured across the pediatric orthopedic discipline. These experts uncover the root causes of pediatric orthopedic conditions and translate their findings into groundbreaking treatments that defeat them.
 
Our physicians wrote the textbook that educates aspiring pediatric orthopedic surgeons and is used as the standard reference guide by practitioners worldwide. Scottish Rite’s fellowship program is one of the oldest and largest in the country, and the fellows have gone on to implement the knowledge they acquired and transform the lives of patients around the world. Our experts developed the consensus medical definition of dyslexia and authored the curricula that has trained therapists and given children with dyslexia the ability to read nationwide.
 
We meet every child where they are in body, mind and spirit. We restore muscles, joints and bones, allay fears and replace despair with hope.
 
About U.S. News Rankings
Introduced in 2007 to help families of children with rare or life-threatening illnesses find the best medical care available, U.S. News & World Report Best Children’s Hospitals rankings are the most comprehensive source of quality-related information on U.S. pediatric hospitals.
 
U.S. News, alongside a research and consulting firm, collected and analyzed data from 119 children’s hospitals and surveyed thousands of pediatric specialists. Children’s hospitals awarded a “Best” designation excelled at factors such as clinical outcomes, level and quality of hospital resources directly related to patient care and expert opinion among pediatric specialists.

One-of-a-Kind Program Teaches Pediatric Fundamentals in Musculoskeletal Ultrasound

One-of-a-Kind Program Teaches Pediatric Fundamentals in Musculoskeletal Ultrasound

The use of musculoskeletal ultrasound (MSK US) is becoming increasingly popular and a point of emphasis in trainee education; however, most training programs focus on conditions in adults. Scottish Rite for Children experts have developed an introductory program to help new users learn about the unique skills and applications in the pediatric setting.

After a successful inaugural course in 2022, Scottish Rite hosted a second MSK US program. The feedback continues to show that we have a unique conference, and we plan to continue offering the program regularly.

This interactive, hands-on program features faculty from a variety of pediatric subspecialities including radiology, rheumatology and sports medicine. Attendees traveled to Frisco, Texas from across the country and internationally with a variety of clinical certifications including physical therapists, sonographers, nurse practitioners, physicians as well as radiology administrators.

Staff were encouraged to hear that all attendees indicated they were “very likely” or “definitely” going to recommend this course to others. Asked about the best part of the program, attendees’ responses are indicative of what future participants should expect:

  • All the hands-on activities intermixed with patient lecture beforehand; the teachers were incredibly kind.
  • Having pediatric patients!! Variety of faculty. Loved having MDS, RMSK, US Sonographer and radiologists. Truly a fantastic course.
  • Short lectures alternating with hands-on
  • Hands-on practice in SMALL groups with EXPERIENCED mentors.
  • It was so helpful having pediatric models – I really learned a lot from the hands-on sessions!
  • Multi-modal approach to learning
  • The dual hands-on and lecture content kept my mind and body awake and elevated the overall learning experience!

Jacob C. Jones, M.D., RMSK, says, “The program is intended to offer an introduction to ultrasound basics including settings, scanning and injection techniques focused on skeletally immature patients.” Throughout the day, more than 20 children and teens ranging from 5 to 19 shared their time with our learners.

After a lecture introducing scanning for rheumatologic conditions, participants observed and practiced scanning patients with active joint inflammation. Nurse practitioner Heather Benham, D.N.P., APRN, CPNP-PC, RhMSUS explains, “We are grateful for these patients and the other children volunteers who make this course so special. It is very difficult to teach these principles when scanning healthy joints.”

During one scanning session, Scottish Rite sonographer Kelly Sherrard, RDMS, demonstrated the techniques of evaluating newborns for developmental dysplasia of the hips. Three-month-old twins served as our models for this exciting addition to the program. The expertise required for this population makes it difficult to include this training in the program, but attendees expressed their appreciation for the demonstration and the complexity of the skill.

Join the email list so you can gain early access to registration for future courses. Our next program is being planned for November 2023.

Share Your Story: Exceptional Care

Share Your Story: Exceptional Care

Meet Sam, a patient who is treated by our experts in the Center for Excellence in Hip. Sam and Dr. Kim have formed a special bond through the years, as Sam was just 9 years old when he first became Dr. Kim’s patient. Sam has a childhood disorder of the hip called Legg-Calvé-Perthes disease, also known as Perthes disease.

Perthes is a condition in which a child’s hip joint is abnormal, and the blood supply to the head of the thighbone is temporarily stopped. Perthes is uncommon — approximately five to 10 children per 100,000 will be diagnosed each year — and it more commonly affects boys — one in 760 boys.

Nonsurgical treatments might include reducing physical activity and weightbearing on the affected legs using crutches, wheelchairs, casting and/or bracing. In Sam’s case, a surgery called an osteotomy was necessary. Surgical treatments for Perthes might include pelvic or femoral osteotomy, a process that reorients the pelvis or femur. In older children, another treatment option is to make bone channels to speed up healing and to inject bone marrow stem cells.

Perthes disease is a very uncommon condition that few doctors have experience in diagnosing and treating. It is important for parents to find a pediatric orthopedic specialist with a special interest in Perthes disease that cares for children with the condition regularly. 
 
Under the direction of Harry Kim, M.D., M.S., researchers in our Center for Excellence in Hip are dedicated to studying the progression of Perthes and other hip conditions, in kids just like Sam. Scottish Rite for Children is the leading center for the International Perthes Study Group (IPSG). 

IPSG includes more than 50 pediatric orthopedic surgeons and researchers from 10 different countries who are dedicated to improving the care of patients with Perthes disease. Their research provides important insight into this condition and will lead to the development of new treatment methods. As a long-time patient at Scottish Rite, Sam also participated in clinical research studies and understands the impact of quality patient care and the importance of research on a patient’s life.
 
It’s been a couple of years since your last surgery. How are you doing?  
I am currently in high school, and in the summer, I work as a lifeguard at our local pool. I think my life is pretty normal. My friends understand it can sometimes hurt when I walk for too long, so I use my bike to ride when my friends are walking, or we all take the golf cart. 
 
Can you talk about your connection with Dr. Kim?  
Dr. Kim and his staff have always explained everything to me in ways that I can understand. As a teenager, they talk to me about my disease and include me in everything. I really appreciate the effort they make to keep me involved in my care.
 
Do you have any specific memories about your time spent at Scottish Rite? 
Scottish Rite helped me stay active when I couldn’t walk. I learned how to do special stretches and started doing activities that allowed me to stay active and strong during treatment. I’m thankful I was able to keep moving, and I continue to swim and play sled hockey. Because of the treatment I received from Scottish Rite, I can walk, hike, play and have fun with my friends! 
 
Also, when I had my different surgeries, I loved spending time in the Child Life Playroom. Everyone was really nice and helped make things seem less scary. 

What would you tell patients and families thinking about participating in research at Scottish Rite? 
Do it! It is the best decision you can make! 
 
What are your plans for your future? 
I am on my school’s robotics team. I want to be an engineer. 

Can you talk about your overall experience at Scottish Rite? 
Sam’s mom, Nerissa – I have learned that the Scottish Rite will take care of you. Sam is inspiring others in the sport of sled hockey and staying active in a sport he loves because of Scottish Rite! Sam is actually my second child to benefit from Scottish Rite. My daughter Meredith went through the Take Flight program and graduated high school with an incredible GPA! None of this would be possible without Scottish Rite!

I feel incredibly fortunate to have Dr. Kim as my son’s doctor. Not only does he provide exceptional medical care for my son’s bone disease, but he also goes above and beyond.

One aspect that truly sets Dr. Kim and his staff apart is their commitment to attending Camp Perthes every year. This camp serves as a wonderful platform for encouragement, not only for Dr. Kim’s patients and parents, but also for everyone in attendance. It’s truly heartwarming to see a medical professional and team take the time to support and uplift individuals facing challenges.

The care and support we have received from Dr. Kim and his staff have been outstanding. They are an incredibly caring and supportive group of professionals who genuinely understand the difficulties that come with dealing with something hard in life. Their compassionate nature and dedication make a world of difference in our journey.

Dr. Kim’s expertise in treating my son’s bone disease is exceptional. He and the team consistently ensure that we understand the treatment options available and take the time to answer all our questions with patience and clarity. His approach instills confidence and trust, which is invaluable in such a challenging situation.

Scottish Rite for Children is equally remarkable. Everyone is friendly, attentive and always ready to lend a helping. I cannot recommend Dr. Kim and his team highly enough. If you are looking for a doctor who genuinely cares and supports you through difficult times, Dr. Kim is the one to trust.

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.

Bracing for Scoliosis

Bracing for Scoliosis

At Scottish Rite for Children, we are committed to providing individualized patient care to every child. As one of the most common conditions our experts treat, scoliosis can present in many forms. Depending on the child and the severity of their curve, the plan for treatment can vary. 

Bracing is a treatment option for patients whose curve is smaller to moderate. It is during a patient’s adolescent years that he or she is growing the most, which means their curve can also grow. The ultimate goal of a brace is to prevent the curve from getting larger to ultimately avoid the need for surgery in the future. However, a brace does not cure scoliosis.

At Scottish Rite, there are different types of custom-made braces for patients. Below are the most common:

TLSO (Boston) Brace

  • TLSO stands for thoracolumbosacral orthosis.
  • For a child whose curve ranges from 25 to 40 degrees and is located in the middle to lower back.
  • This brace is worn during the day. Depending on the child’s curve, the doctor will prescribe the number of hours he or she should wear the brace.
  • Custom made for every child, the brace starts at the armpit and comes down to the pelvic bone.
  • The brace is worn under clothing.
  • Patients are able to remain active while wearing the brace. However, you must check with your doctor on any restrictions.

Providence (nighttime) Brace

  • Used for smaller curves located lower on the spine.
  • Most effective for patients who still have a good amount of growing left.
  • Because of its structure, this brace can only be worn at night.
  • The brace goes up one side of the body, essentially pushing the curve the opposite way.
  • The brace holds the spine in the correct straight position while growing during the night.
  • It is custom made for each child.
  • It doesn’t hurt, but if uncomfortable, it can be refitted.
  • Within a few days, patients say they are used to sleeping while wearing the brace.

Learn more about scoliosis bracing.