Scottish Rite for Children and Texas Woman’s University Receive Funding Award to Launch CP-TRAIN Initiative
Scottish Rite for Children, in partnership with Texas Woman’s University (TWU), has been awarded $285,000 through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI).
The funding supports the launch of the Cerebral Palsy – Training in Research, Assessment and Intervention Network (CP-TRAIN). The initiative includes two years of work focused on improving care and outcomes for children with cerebral palsy.
“The goal of CP-TRAIN is to equip stakeholders with the knowledge and skills needed to participate in patient-centered research that compares different treatments and approaches to advance CP outcomes,” said Angela Shierk, Ph.D., O.T.R., Scottish Rite senior scientist and project lead. “As a collaborative initiative, CP-TRAIN helps patients, families and clinicians better understand comparative clinical effectiveness research so they can actively engage in it.”
Cerebral palsy is a group of conditions that affect movement, balance and posture. Children with CP may have challenges walking, using their hands or engaging in other daily activities. Treatment for the condition varies but typically includes medication, as well as physical and occupational therapy.
CP-TRAIN will work alongside people with cerebral palsy, their families, therapists, clinicians and researchers to create clear, easy-to-use educational resources. These materials will help individuals and families better understand research, feel confident taking part in studies and learn about effective assessments and therapy approaches that support everyday life and participation.
“By working with families and community-based therapists as partners, we are helping ensure that future research reflects real-world needs and can be used in everyday practice,” said Heather Roberts, Ph.D., O.T.R., CP-TRAIN co-lead and associate director in the TWU School of Occupational Therapy.
Together, Scottish Rite and TWU will build on an existing CP Task Force that was formed through a prior PCORI-funded project. “This award allows us to move from identifying priorities to preparing people to actively participate in research,” Shierk said.
The CP-TRAIN program will deliver free, open-access educational content through a hybrid model that includes online learning modules, live virtual sessions and in-person activities. All materials will be co-developed with stakeholders to ensure inclusivity, accessibility and relevance across diverse care settings.
“Pioneering research continues to be a key pillar that is foundational to our institution,” said Robert L. Walker, President and CEO of Scottish Rite for Children. “This generous award from PCORI will enhance our ability to advance care for children with cerebral palsy.”
Scottish Rite’s project and the other projects approved for funding by the PCORI Engagement Award Program were selected through a highly competitive review process in which applications were assessed for their ability to meet PCORI’s engagement goals and objectives, as well as program criteria.
“This project was selected for Engagement Award funding because it will build a community equipped to participate as partners in comparative effectiveness research and develop partnerships and infrastructure to disseminate PCORI-funded research results,” said Greg Martin, PCORI’s Chief of Engagement, Dissemination and Implementation. “We look forward to working with Scottish Rite throughout the course of their two-year project.”