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Share Your Story: Strong and Independent

Share Your Story: Strong and Independent

by | Jan 4, 2023 | Scoliosis & Spine

Rhudi, a strong and independent 18-year-old from Natalia, Texas, had her life turned around when she was diagnosed with congenital kyphoscoliosis, a severe form of scoliosis that causes the spine to curve both to the side and forward or backward. Rhudi was an infant when her mom first noticed a curvature to her spine. Initially, Rhudi was monitored by a local South Texas orthopedist, but when she became a teenager, her spinal curve progressed, and they sought care and treatment from the experts at Scottish Rite for Children in Dallas.

Her condition took her away from her school, her friends and her family, but Rhudi’s parents were determined to get her the best treatment possible and to get her back home and active. In 2019, Rhudi underwent surgery with Daniel J. Sucato, M.D., M.S., which included the application of halo gravity traction, a device that attaches to the head and gently stretches the spine using a pulley device.

Rhudi was an inpatient at Scottish Rite while she continued treatment for her scoliosis and was in a wheelchair for about six months. While she was an inpatient, Rhudi made many friends and built relationships with the other inpatients and the staff who cared for her. During her physical therapy treatment, she was encouraged to go to college after graduating high school to become a physical therapist. She is now a senior in high school. She does all the things she loves, which includes Color Guard, mariachi, playing the violin and singing! She has learned a lot through her journey and hopes to keep helping others to work hard for their success.

“This hospital has taught me a lot and has made me who I am today. I have learned how to be a strong and independent person by working really hard for my successes.” – Rhudi

Learn more about our Center for Excellence in Spine.

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.

Get to Know our Staff: Emily Lachmann, Clinical Research

Get to Know our Staff: Emily Lachmann, Clinical Research

by | Dec 14, 2022 | Scoliosis & Spine

Each year, our team seeks out college students interested in pursuing a career in medicine. Clinical Orthopedic Research Assistants (CORA) are hired at Scottish Rite for Children to assist our experts in performing clinical research tasks and collaborating on research projects. CORA staff are also mentored by our experts and given valuable advice and guidance for their future. Each CORA staff member specializes in a specific area of study and works with the experts in that department, receiving a well-rounded experience in their field of interest.

What inspired you to apply for the CORA/MSRF position?
After deciding to take a gap year before medical school, I was unsure about what I wanted to do. I applied for the CORA program because this position encompassed everything that I was searching for to prepare me for medical school from taking on research projects, working with a physician mentor, having lots of shadowing opportunities and getting experience with patients.

Have you always been interested in medicine and/or research?
I have always been interested in medicine, but my interest in research did not develop until my undergraduate years at Baylor University. During that time, I worked for a principal investigator that was developing a phone application to detect early stages of retinoblastoma (eye cancer) in children. This really opened my eyes to the impact of research, particularly in pediatrics, where we have the power to change children’s lives. I am so grateful to continue this type of work at Scottish Rite for Children.

What is it like working at Scottish Rite for Children?
Working at Scottish Rite has beyond exceeded my expectations. The staff here are so kind, and everyone truly values the mission of the organization to give children back their childhood. From my first day, the research team and the clinic staff were so welcoming and wanting to help me succeed in this new role. Specifically, the members of the Spine Research team have gone above and beyond to teach me the skills I need to be a successful researcher and future physician. Although Scottish Rite is made up of many different departments, it is clear that we are one big team.

Can you share a few sentences about someone at Scottish Rite who has been a mentor to you and how they have impacted your experience? What project are you working on with that mentor?
Dr. Amy L. McIntosh was the first mentor I worked with, and she was quick to make an impact on me. I was unaware of her impact at the time, but after learning more about her, I feel privileged to have her as a mentor. Her work as the Director of Clinical Safety, her passion to support women in STEM and her lead as the principal investigator to one of our largest scoliosis studies is inspiring to someone who is starting their career in medicine. When I am down in the clinic, Dr. McIntosh is always very welcoming and constantly inviting me to shadow with her. She takes the time to show me X-rays so that I can learn and better my understanding of complex conditions. In addition to working closely with her on the Early Onset Scoliosis study, Dr. McIntosh gave me the opportunity to work with her on a manuscript about reducing patient narcotic usage after scoliosis surgery, which recently got accepted to a pediatric anesthesia journal!

How do you think this experience will impact your career path?
The CORA program gave me invaluable experiences that were both helpful toward my immediate goal of medical school and will be helpful toward my long-term career goals. The experience working with patients, learning how to collaborate with principal investigators, and understanding the ins and outs of clinical research will have endless benefits. All these experiences have grown my confidence in communicating with patients and the various medical teams, applying to medical school and in my abilities as a researcher.

What progress have you made toward your career goal since beginning the program?
Since beginning this program, I have been accepted to medical school and will be attending UT Southwestern, Class of 2027. Also, I have had the opportunity to be an author on multiple abstracts and publications, one of which recently just got accepted by a pediatric anesthesia journal!

What is your favorite project that you are currently working on or have worked on at Scottish Rite?
My work on the Early Onset Scoliosis Study is my favorite and most rewarding project. The children are the most resilient and sweet. Getting to see and work with these patients and their families is the highlight of my day. It is so rewarding and fun to share the research process with them and to educate them on the impact research can have for future children.

What advice do you have for future CORA/MSRF participants?
Be thankful for this opportunity! Scottish Rite for Children is such a special place filled with the most supportive staff. Be a good team player, work hard and always put the patients first!

What is one thing most people don’t know about you?
I love playing sports and am extremely competitive! Last year, I broke my finger playing flag football. (I am also an orthopedic patient myself!)

Anything else you would like to add?
This program is not just a job. The CORA program does lots of fun activities outside of work, too! For example, we put together a relay team to take down the doctors at the Dallas Marathon this December!

If you are interested in a career in medicine and plan to take a year or two after college before applying to medical school, learn more about becoming a clinical orthopedic research assistant (CORA) on our careers page. Applications for June 2023 positions are being accepted through spring of 2023.

If you are in medical school and are interested in a research opportunity, learn more about becoming a medical student research fellow (MSRF) on our careers page.

Share Your Story: Cookies and Castles Connection

Share Your Story: Cookies and Castles Connection

by | Dec 2, 2022 | Scoliosis & Spine

Meet Henley, a patient who was seen by our team of scoliosis and spine experts. Learn more about her journey below.

Blog written by Henley’s mom, Lauren.

In January 2022, Henley saw a new pediatrician for her annual well child appointment. At that appointment, she was screened for scoliosis. The pediatrician noticed a curvature in her spine and referred us to a specialist. Unfortunately (or really, fortunately!), the specialist wasn’t taking new patients, and a good friend of ours urged us to visit Scottish Rite for Children.

As a parent, I felt lost, overwhelmed and a little fearful of this new and unknown venture. From the second we stepped in the door at Scottish Rite, we felt like we were at the Ritz-Carlton of hospitals. Everyone was so kind, helpful and accommodating to Henley (and to me, too!). Henley had X-rays and an MRI done, which could be very scary for an 8-year-old, but the staff were incredibly patient and understanding. 

Once Henley was diagnosed with scoliosis, she was sent to the Orthotics and Prosthetics department, where she was fitted for a brace. She picked out a pattern for the brace and has been very diligent about wearing it. Henley will continue wearing her brace until she is done growing, so we have many years of care at Scottish Rite in our future! In a time that can be daunting and stressful for families, Scottish Rite has alleviated so much pressure from our family by their kind hearts and helping hands. 

Coincidentally, a close friend of ours was a Tri Delta at SMU and throughout the years, has invited us to participate in the annual Cookies & Castles event. This wonderful event directly benefits the Orthotics and Prosthetics department at Scottish Rite. We have decorated many gingerbread houses and as we attend Cookies and Castles this year, we will be doing so with an even greater appreciation.

Scottish Rite shifted our experience from stressful and daunting to something where we feel confident and supported on our scoliosis journey. When we have appointments, I have nothing to stress about. I know that we will find all the support we need at Scottish Rite with smiling faces. Not only does Henley gets excited to come to her appointments with Dr. Johnson, but also she loves learning about the progress being made from wearing her brace. She loves checking out the fish and getting popcorn, too.

Henley is currently a third grade cheerleader and a Girl Scout Brownie. She is on the UIL Storytelling team and in Junior FFA. In the spring, she’ll play volleyball and join a tumbling class. She adores animals, including her cat Kiki and her labradoodle Tito. In her free time, she loves playing with her little sister Presley and her friends. She also loves reading, drawing and baking!

Cookies & Castles Dallas and Cookies & Castles Frisco have been long-time supporters of Scottish Rite for Children. Both events take place at our campuses in Dallas and Frisco, where friends, families and patients can decorate gingerbread houses while supporting our organization. These events have raised nearly $1 million total for Scottish Rite throughout the years! We’re grateful to the unwavering support of Cookies & Castles, the Dallas Alumnae Chapter of Tri Delta and the North Texas Area Alumnae Chapter of Tri Delta. 

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.

The Psychology of Spine Surgery Pain in Children

The Psychology of Spine Surgery Pain in Children

by | Nov 2, 2022 | Press Coverage, Scoliosis & Spine

Article previously posted on Orthopedics This Week

by Elizabeth Hofheinz, M.P.H., M. ED.
 
How catastrophic is surgical pain for children? A group of researchers from Scottish Rite for Children, the University of Texas (UT) Southwestern Medical Center, and The Chicago School of Professional Psychology (all in Texas) set out to examine pain catastrophizing in adolescent idiopathic scoliosis (AIS). Their work, “Pain Catastrophizing Influences Preoperative and Postoperative Patient-Reported Outcomes in Adolescent Idiopathic Scoliosis,” appears in the August 18, 2022, edition of The Journal of Bone and Joint Surgery.
 
“We began this work about seven years ago as we saw more adolescents having difficulty with pain postoperatively,” stated co-author Brandon Ramo, M.D. to OTW. Dr. Ramo, who is with Scottish Rite and UT Southwestern Medical Center, added, “We were able to undertake this work because we are fortunate enough to have a strong child psychology group in our hospital to partner with. The timing seems right in some ways because the pandemic has clearly accelerated the decline in mental health in our teenagers.”
 
The authors undertook a prospective cohort study of 189 consecutive patients undergoing posterior spinal fusion for AIS, comparing patients having clinically relevant pain catastrophizing with patients who had normal Pain Catastrophizing Scale scores.
 
They found that 20 patients (10.6%) engaged in pain catastrophizing. And, even though the demographic and radiographic variables were similar, the researchers determined that pain catastrophizing was associated with significantly lower preoperative scores than those in the normal pain catastrophizing group in all of the Scoliosis Research Society Questionnaire Domains: pain (2.98 versus 3.95), appearance (2.98 versus 3.48), activity (3.51 versus 4.06), mental health (3.12 versus 4.01), and total score (3.18 versus 3.84), except satisfaction (3.72 versus 3.69; p > 0.999).
 
“We showed a fairly high rate of pain catastrophizing in a ‘seemingly otherwise normal, healthy’ population of adolescent patients, 1 in 10, which means if you operate on AIS, you will encounter it at least several times per year,” commented Dr. Ramo to OTW. “These patients will finish with poorer outcomes than their peers, so if you don’t recognize this psychological trait, you can’t intervene beforehand (referral, expectation management) and their outcomes scores will be lower.”
 
“We showed good correlation with the Scoliosis Research Society Pain domain, which you could use as a proxy to detect this or use an electronic medical record (EMR)-based algorithm to deliver the Pain Catastrophizing Scale to those patients scoring below our threshold on the Scoliosis Research Society pain domain. The EMR computer can work for us to do this and identify at-risk kids with simple questions and a very simple algorithm.”
 
Time heals?
 
The good news about the paper, Dr. Ramo told OTW, “Patients with pain catastrophizing, because they start so low on their PRO scores, actually have larger increases in their scores after surgery, so while they never ‘catch up’ to their peers, they actually ‘do well’ with surgery and should still be offered these elective surgical procedures. Don’t be afraid to operate on them.”
 
“For us, this has changed our practice in that we have implemented an EMR-based process: we are now administering the Scoliosis Research Society questionnaire when we sign the patient up for surgery as a clinical tool, rather than as a research tool in the days before. We had our EMR developers build the Scoliosis Research Society questionnaire into our EMR, and using parameters from our study, if they score below a certain threshold on the Scoliosis Research Society questionnaire, the computer administers the Pain Catastrophizing Scale.”
 
“If they have a concerning pain catastrophizing score, the surgeon’s team is notified, and a consult can be placed to psychology well in advance of the surgery. This allows the patient to receive psychological support, perhaps improving expectations and maybe (that’s the next study) their outcomes.”

Read the full article.

Forbes Health: Scoliosis: Symptoms, Treatments, Mental Health Affects And More

Forbes Health: Scoliosis: Symptoms, Treatments, Mental Health Affects And More

by | Aug 15, 2022 | Press Coverage, Scoliosis & Spine

Scoliosis is a spine condition that affects approximately 2% to 3% of the global population, according to the American Association of Neurological Surgeons. Whether you have scoliosis yourself or know someone who does, read on to learn more about the condition, its types and causes, common symptoms and treatments, how it can affect mental health and more.

Read the entire article.

Share Your Story: Oh, the Places You’ll Go!

Share Your Story: Oh, the Places You’ll Go!

by | Jul 19, 2022 | Scoliosis & Spine

Meet Beau, a patient who is seen by our team of multidisciplinary experts. Learn more about his journey below.

Blogs written by Beau and his mom, Courtney.

When Beau was 6 months old, he was placed in the Chinese orphanage system, and our family adopted him in 2017, when he was 4 years old. We did not know much about his history, as he lived in a very large orphanage and information was not passed along. We did know he would be somewhat of a medical mystery and booked his appointment with our pediatrician before we even left China.

Beau is a complex patient, and after a variety of appointments and tests, he was eventually diagnosed with a form of dwarfism called spondyloepiphyseal dysplasia congenita (SEDc) and a monoallelic mutation of COL2A1 gene. This is a rare genetic disorder that impacts different parts and systems of his body, including his eyes, hearing, spine and more.

In May 2021, Beau’s spinal curve rapidly started to increase, and that is when our orthopedic surgeon in Houston referred us to Scottish Rite for Children. We really love and trust our doctor in Houston, so it was very comforting to hear him say, ‘If my kid needed this done, where I’m sending you is where I would go. They are my number one choice.’ My anxiety as a mom went away, and I immediately started to research everything I could. We took the first available appointment and met Dr. Johnson for the first time at the end of June. She gave us a game plan for surgery, and we left with a sense of peace about the journey we were about to take with Beau at Scottish Rite.

In January 2022, Beau had spinal surgery and was in halo decompression for the next five weeks. Halo-gravity traction is the process of using a metal ring, or halo, attached to a child’s skull that applies traction to the spine, gently stretching and straightening out the spine to correct curvatures. – Courtney

I had so much fun in my halo, and my mom decorated my equipment, which made it even more fun! My walker was Mardi Gras-themed the entire time. I always had beads to hand out, and sometimes I even had a speaker playing Mardi Gras music!

My wheelchair was first decorated as the emperor’s throne, because of Chinese New Year, and I handed out handmade fortune cookies. I created all the sayings, and my mom made paper cookies. I even painted my face like a tiger, because we are in The Year of the Tiger.

For Valentine’s Day, my decorations were full of hearts, lights and sparkles. I had a cool shirt that said, ‘Just call me Cupid’ and wore an awesome red top hat with heart glasses. My mom and I made over 350 valentines, and we handed them out around the hospital. I know that there are a lot of people that are needed to make hospitals run smoothly, and I tried to meet all of them. I wanted to remind them that they are important, and I was thankful for all they did during my stay.

After surgery, I went home in a wheelchair. My farewell theme decorations were Oh, the Places You’ll Go! My mom said that this was a perfect theme to represent moving from China to the United States. Not only did I have to learn and adapt to a new world, but because of my spine surgery at Scottish Rite, I also have a new level of life, and nothing is going to hold me back!

I feel like I will be able to do anything I set my sights on, thanks to different people at Scottish Rite. The Therapeutic Recreation department allowed me to participate in sports and games that I never thought I would be able to do. My size can make sports hard, but they showed me how I could fully participate with just minor modifications.

When I was an inpatient, Ms. Dana gave me my very own Learn to Golf set of golf clubs, and we had a special visitor during therapeutic recreation – Mr. Carlos. He taught me how to play golf, plus he had a huge smile, was super nice, and has a special leg. We live near a golf course, and I have always wanted to learn how to play, but because of my size and my back, I never thought I would be able to participate. Mr. Carlos worked with me, and I learned how to make adjustments and was able to swing a golf club and hit the ball. After my big surgery, he even came to check on me. Learn to Golf will allow me to keep playing the sport and has connected me with special coaches, just like Mr. Carlos.

I am now back home in Houston and feeling good. I will always remember Scottish Rite for Children, and I look forward to my checkups because I can visit my friends all around the hospital, and they always remember my name!! – Beau

DO YOU HAVE A STORY? WE WANT TO HEAR IT! SHARE YOUR STORY WITH US.