How Ryan Lives Life to the Fullest With A Limb Difference

How Ryan Lives Life to the Fullest With A Limb Difference

“Because of his care, Ryan can run and play like a normal kid his age with no problems,” says Jessica, describing what Scottish Rite for Children means to her family and her son, Ryan. From San Augustine, Texas, 7-year-old Ryan enjoys the great outdoors. From fishing to camping, he is always on the move with his younger sister, thanks to the treatment he receives from his care team.

At birth, Ryan was diagnosed with clubfoot, a condition that caused his right foot to turn inward and point downward. However, he was required to wear a custom brace with a lift due to an undiagnosed limb difference. After receiving care at outside insitutions, Ryan’s parents began researching their options, and in 2022, they came to Scottish Rite for solutions.

 

Upon arrival for their first visit, Ryan and his family met experts from the Center for Excellence in Limb Lengthening and Reconstruction. Chief of Staff Emeritus J. A. “Tony” Herring, M.D., found that Ryan has tibial hemimelia in his right leg, specifically an atypical type 4 variant. This type of tibial hemimelia is rare and can cause significant foot and ankle deformity. After several X-rays and exams, they determined a Syme’s amputation would be the best option.

“The care team was so thorough that we had already made our decision before even leaving,” Jessica says. “They even explained everything to Ryan at a kid’s level. Now, Ryan feels comfortable answering all the doctor’s questions without me talking for him.”

A Syme’s amputation is a surgery that is done through the ankle joint, which prepares the leg for a prosthesis. After his amputation, Ryan worked with prosthetists and physical and occupational therapists to learn how to move around with his new prosthesis. Prosthetist Sara Martinson, L.P.O., C.P.O., created a custom-fitted prosthesis for Ryan while also forming a friendship with him.

“Ryan’s favorite person at Scottish Rite is Sara,” Jessica says. “Even if we are with another team member that day, Sara will stop by to greet and check on Ryan. She has been a godsend for sure.”

Now under the care of pediatric orthopedic surgeon Corey S. Gill, M.D., M.A., Ryan is thriving. Dr. Gill continues to monitor his limb difference, ensuring that Ryan can run, jump and play as much as he wants. “I wish we would have found Scottish Rite sooner,” Jessica says. “Everyone has been like family, and that means more than you will ever know.”

KLTV: Briggs’ Transformative Hand Surgery

KLTV: Briggs’ Transformative Hand Surgery

Briggs was born with no thumb and seven fingers — a rare condition seen only three times by staff orthopedic hand surgeon and the director of the Center for Excellence in Hand Scott Oishi, M.D., FACS. After undergoing three surgeries, Briggs is now affectionately known as a “superhero.”

“You have a kid who is sick or born differently, and that’s how those superheroes are — the ones they see in movies or on TV,” Oishi said. “There’s something special about that analogy.”

Watch the full story on KLTV.

Get to Know Our Staff: Marida Williams, Psychology

Get to Know Our Staff: Marida Williams, Psychology

What is your job title/your role at Scottish Rite?
I am a mental health navigator for the Psychology department. I assess patients’ mental health risk through consultations and interventions to provide families with resources for their children.

What is the most fulfilling part of your job?
I get to meet new patients and help them in their care journeys toward achieving mental health stability.

What makes Scottish Rite a special place to you?
I have made connections with the staff and physicians, which helps ensure that all patients receive quality care.

What made you choose a career in health care?
I have a passion for helping others, so it feels like health care naturally chose me.

What is something unique you get to do in your position?
Whenever a patient has mental health needs, I am the first person who connects with their family. Because of this, I get to set the tone for the level of care they will receive at Scottish Rite from the rest of the staff.

What’s your favorite thing to do outside of work?
I enjoy spending time with my family and friends. We create memories together that will last a lifetime.

Do you have any hidden talents?
I can sing.

Where are you from, and what brought you to DFW?
I am originally from Detroit, Michigan. The hotter weather and new experiences brought me to the DFW area.

If you could travel to anywhere in the world, where would you go and why?
I would choose to go to Ghana. I would love to experience the culture there and take my kiddos with me.

If you had to pick one meal to eat for the rest of your life, what would it be and why?
I choose salmon. I know how to prepare it a thousand different ways, and I would never get tired of eating it.

What movie do you think everyone should watch at least once?
I think people should watch “Inside Out” and “Inside Out 2” because those movies explain mental health in a great way.

What was the first concert you attended?
I saw Allen Stone in Chicago, Illinois in 2013.

Favorite DFW hidden gem?
The Peach Cobbler Factory in Richardson.

If you were to have a movie based on your life, which actress/actor would you choose to play your character?
Coco Jones

What is some advice you would give your younger self, OR what’s the best piece of advice you’ve received?
You should enjoy life to the fullest and make every moment count!

From Patient to Advocate: “The Chosen” Actor Jordan Walker Ross Inspires All

From Patient to Advocate: “The Chosen” Actor Jordan Walker Ross Inspires All

Actor, filmmaker and screenwriter Jordan Walker Ross describes Scottish Rite for Children as a place of love and hope. Shortly after Jordan was born, his family brought him to Scottish Rite for cerebral palsy (CP), which affects his muscles and movements. Jordan also developed scoliosis due to his muscle weakness. After years of undergoing multiple hip surgeries, a spinal fusion and recovery in the Inpatient Unit, Jordan recalls only positive memories at Scottish Rite.

“I felt at home at Scottish Rite, even when I was about to undergo a major surgery,” Jordan says. “There was always something happening to help the patients experience something fun and memorable, regardless of whatever pain we were feeling.”

Since age 6, Jordan performed in local theaters and professional productions. However, his condition caused him to develop a limp, which impacted his ability to receive larger roles. This changed in 2018 when Jordan was cast in the TV series “The Chosen,” a historical drama based on the life of Jesus. He plays the role of Little James, who is one of Jesus’ disciples.

“The creator of “The Chosen” made my limp part of my role,” Jordan says. “I used to hide my disability, even feeling embarrassed to call myself disabled. Now, I own it.”

The role of Little James marks a turning point for both Jordan’s career and personal life. Since the success of “The Chosen,” Jordan has received roles in other films and TV shows, like “1883,” “Yellowstone” and “Black Panther: Wakanda Forever.” He credits this to a pivotal scene in season three of “The Chosen” between Little James and Jesus, where Little James asks Jesus why he hasn’t healed him of his condition.

“It was cathartic to perform that scene and to express many frustrations that I’ve had in my life,” Jordan says. After the scene aired, he recalls that people — including patients from Scottish Rite — commented how it helped them feel seen. “I was like, ‘Why don’t I see that in myself?’” he says. “I realized that I had stopped loving myself the way I did back then. Now, I am proud of who I am and what I mean to my community.”

Jordan currently uses his platform to advocate for increased visibility of disabilities in all spaces. From his podcast to public appearances, Jordan promotes self-acceptance for all through his endeavors.

“I have no idea where I would be if it wasn’t for Scottish Rite,” Jordan says. “I refer someone any time I get the chance because Scottish Rite literally changed my life.

Get to Know Our Staff: Ila Oxendine, Research

Get to Know Our Staff: Ila Oxendine, Research

What is your job title/your role at Scottish Rite?
I am a cell and tissue core coordinator, and I maintain the operations of cell culture facilities at the hospital. I also work with research labs that perform various experiments and procedures. Currently, the Cellular Path Lab is enthusiastically engaging in the world of histology procedures.

What is the most fulfilling part of your job?
In research, learning is a never-ending process that is always engaging to me.

What makes Scottish Rite a special place to you?
To me, Scottish Rite is a special place because of the unwavering support from my colleagues. Their kindness, thoughtfulness and camaraderie has always been a source of strength to me over the past 15 years. Together, we have navigated the joys and challenges of life. I could not have reached this point or achieved this much without their support and love. I am profoundly grateful to have such caring souls by my side.

What made you choose a career in health care?
I chose health care to have the opportunity to help people. In my case, I get to do that one experiment at a time.

What is something unique you get to do in your position?
I care for cells that grow in little dishes. These cells will be used in future experiments to answer questions and potentially lead to more questions about the cell’s life.

What’s your favorite thing to do outside of work?
I have many favorite things! I love my two fur babies, which is my dog named AnnaRose and my cat named Panda. I am very thankful for them. Also, I enjoy volunteering at Dallas Animal Services and Dallas Area Habitat for Humanity.

Do you have any hidden talents?
Some people may disagree, but my talent is making people laugh in my own way.

Where are you from, and what brought you to DFW?
I was already in the DFW area, because I am indigenous to the land. I am full-blooded Native American. My mother is from the Arapaho Tribe of Oklahoma, and my father is from the Lumbee Tribe of North Carolina.

If you could travel to anywhere in the world, where would you go and why?
First off, I need to do my travel! On my bucket list, I want to visit the Galapagos Islands, because it’s a unique place with plants and animals found nowhere else in the world.

If you had to pick one meal to eat for the rest of your life, what would it be?
I would eat plain oatmeal with quinoa, hempseeds, flax meal, walnuts, pecans and a dollop of no palm oil peanut butter. I would also include fresh fruit with a strong coffee made from Kona beans. Then, I would finish my meal with a pound cake that I bake.

What movie do you think everyone should watch at least once?
“John Wick” because you should never mess with someone’s dog.

Favorite DFW hidden gem?
Cedar Ridge Preserve. I love all trails.

If you were to have a movie based on your life, which actress/actor would you choose to play your character?
Meryl Streep. She has a very expressive face, and she is very talented.

What is some advice you would give your younger self, OR what’s the best piece of advice you’ve received?
There are two questions that you should ask yourself that have served me well. Is it worth the fight? If so, can you win? To me, my answer will be yes and yes!