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Grace in Motion: How Kathlynn Found Her Inner Strength With Scoliosis

Grace in Motion: How Kathlynn Found Her Inner Strength With Scoliosis

by | Jun 17, 2025 | Prosthetics & Orthotics, Scoliosis & Spine

For Kathlynn, of Waxahachie, Texas, dance is not just a hobby. It is an outlet for expression that brings joy. Just days after Kathlynn’s 10th birthday, she and her family went to the pediatrician for a routine visit. The pediatrician noticed a curve in Kathlynn’s back and administered an X-ray, confirming two curves in her spine. After visiting another facility, the family began searching for resources in their area.

“My husband insisted on getting a second opinion from Scottish Rite for Children,” says Stacy, Kathlynn’s mother. “It was not because he did not believe in the diagnosis. You couldn’t deny the X-ray. However, my husband felt there had to be a place that catered to the experience of children.”

Kathlynn was evaluated by pediatric orthopedic surgeon Amy L. McIntosh, M.D., who diagnosed her with the most common type of scoliosis — adolescent idiopathic scoliosis. Specifically, Kathlynn has two spinal curves — a thoracic, or upper spine, curve of 21 degrees and a lumbar, or lower spine, curve of 22 degrees. During the same appointment, Kathlynn met with orthotist Sara L. Martinson, C.P.O., who custom made a brace to address her spine curve.

“At our first visit, we had the opportunity to meet Dr. McIntosh, who acknowledged and comforted our fears,” Stacy says. “The fact that the brace is made onsite and adjustments can be done anytime is such a gift to us.”

In Kathlynn’s case, brace wear came with the fear of being taken away from her passion —dance. Dr. McIntosh and her family agreed on all-day bracing for Kathlynn, with the recommendation to wear it 20 hours a day. With this plan, Kathlynn wears her brace to sleep and only takes it off for dance. While no limitations were placed on Kathlynn’s physical activities, adjusting to a scoliosis brace can be challenging physically and mentally. For Kathlynn, it encouraged her to work harder.

“Despite the physical demands that come from practicing and performing, Kathlynn never lets scoliosis define her,” Stacy says.

While Kathlynn’s journey is not over, she continues to handle bracing with grace. “Scottish Rite has given us more than medical care,” Stacy says. “They’ve given us hope, education and a clear plan. We’re especially grateful for how the team speaks directly to Kathlynn, helping her feel seen and heard. That connection and level of trust have made a huge difference in her commitment and growth.”

One Diagnosis, Two Unique Journeys: Ellie and Josie Take On Scoliosis Together

One Diagnosis, Two Unique Journeys: Ellie and Josie Take On Scoliosis Together

by | Jun 9, 2025 | Prosthetics & Orthotics, Scoliosis & Spine

With an insatiable love for reading, 13-year-old Ellie and 10-year-old Josie, of McGregor, Texas, have always turned the page of their story together, even as they face scoliosis side by side. Their mother, Sarah, recognized the signs early as she was diagnosed with scoliosis herself as a teenager.

“I always knew it could be a possibility for my kids,” Sarah says. “I noticed that both girls began to develop curves that were apparent even to an untrained eye, so we started to look for options.”

Ellie, Josie and their family came to Scottish Rite for Children where they receive treatment from Megan E. Johnson, M.D. — medical director of Ambulatory Care, pediatric orthopedic surgeon and program director of the Dorothy & Bryant Edwards Fellowship in Pediatric Orthopedics and Scoliosis. During their first evaluation, Dr. Johnson discovered that both girls have idiopathic scoliosis, the most common type of scoliosis with no known cause.

While Ellie and Josie share a similar diagnosis, no two spine curves are the same. Ellie has adolescent idiopathic scoliosis (AIS), which primarily affects children and teens between the ages of 10 to 18. In her case, she has two curves — a 30-degree thoracolumbar curve, where the upper and lower parts of the spine meet, and a 21-degree thoracic, or middle back, curve. Josie has juvenile idiopathic scoliosis, which affects children between the ages of 4 to 10. In her case, she has a 33-degree thoracic curve.

To treat both girls, Dr. Johnson recommended bracing. Bracing is typically used for curves measuring between 20 and 45 degrees. It is prescribed to prevent curves from worsening. For Ellie and Josie, Dr. Johnson instructed them to wear their scoliosis braces for 18 to 20 hours a day.

“I knew one scoliosis brace could be expensive,” Sarah says. “However, two? Could we really afford that?” To make Ellie’s and Josie’s braces more affordable, their family enrolled in Scottish Rite’s Crayon Care program. Crayon Care is a charity care program that provides financial assistance to families receiving treatment at Scottish Rite. “Scottish Rite’s Crayon Care has been such a blessing to us,” Sarah says. “We know we are getting the best care for Ellie and Josie.”

Scottish Rite’s in-house Orthotics and Prosthetics department created custom braces for Ellie and Josie for same-day fittings at their appointments. Additionally, their care team consists of certified pediatric nurse practitioner Emily Chapman, APRN, CPNP-PC, and Director of Orthotics Don Virostek, C.P.O., L.P.O. Virostek creates and fits Ellie’s and Josie’s braces while Chapman monitors their spine curves for any growth.

While bracing started as simply a treatment plan, it kick-started a friendly competition between the sisters. All Scottish Rite for Children braces include a small temperature-sensitive device that tracks how long a child wears their brace and their progression.

“Ellie and Josie get really competitive about wearing their braces,” Sarah says. “We always look forward to seeing who wore their braces longer when we visit Scottish Rite.”  

Recently, the girls returned to Scottish Rite for a visit with their three younger sisters. During their appointment, they discovered the winner of their brace-wearing contest. By a difference of only one hour, Ellie wore her brace longer. Although their story is still being written, Ellie and Josie continue to support each other through every chapter.

“We are thankful to see the improvements in their spines,” Sarah says. “I’ve recommended Scottish Rite to other parents because of the level of care. We are so thankful that Scottish Rite is relatively close by and feel great, knowing we have this wonderful resource.”

The Pattern of Perseverance: How Scoliosis Fueled Gabbi’s Passion for Fashion

The Pattern of Perseverance: How Scoliosis Fueled Gabbi’s Passion for Fashion

by | Jun 6, 2025 | Scoliosis & Spine

Hidden in every seam of a garment is a unique story, as 21-year-old Gabbi would discover. While she has always loved fashion, Gabbi’s appreciation for design would develop in the most unexpected places — from her own scoliosis journey. “I always follow the wise words of Coco Chanel that beauty begins the moment you decide to be yourself,” Gabbi says. “Fashion is where individuals can express themselves through their own ideas of creativity.”

At age 15, Gabbi and her family were referred to Scottish Rite for Children for a scoliosis evaluation. Certified physician assistant Jessica Landson, P.A.-C., diagnosed her with adolescent idiopathic scoliosis (AIS) of the thoracic, or upper spine, region. AIS is the most common form of scoliosis that affects children and teens between the ages of 10 to 18 with no known cause.

In Gabbi’s case, her diagnosis affected more than just her physical well-being. While she had asymmetry in her waist and shoulders, she also developed a sense of body dysmorphia. Body dysmorphia is a mental health symptom that occurs when someone experiences negative emotions and/or hyper focuses on a real or perceived flaw in their appearance.

“Not only was I struggling on the inside, but I also struggled on the outside,” Gabbi says. “I was in constant pain because of how my scoliosis affected my ribs. I felt ‘big’ because of the way my back lumped from my curved spine.”

To correct Gabbi’s curve that had grown to 51 degrees, pediatric orthopedic surgeon and Assistant Chief of Staff Brandon A. Ramo, M.D., performed a spinal fusion. The procedure kick-started her healing journey from the inside out, helping not only her condition but also her body dysmorphia.  

“My experience at Scottish Rite was incredible,” Gabbi says. “Dr. Ramo is one of my favorite surgeons of all time. He has this calming aura around him, and he made my surgery a breeze in all aspects.”

After surgery, Gabbi explored her passion for fashion through her studies. She majored in apparel design and marketing at the University of Arkansas. For her school’s final project, Gabbi showcased her care journey with scoliosis through fashion in the form of creating a dress.

“The idea of the dress came to me because we had to create something that impacted our lives,” Gabbi says. “The significance of this garment is very important to me because I didn’t know the full extent of my body dysmorphia until after my surgery.”

Gabbi’s project consisted of a long formfitting dress to display the curve of her spine. The garment incorporated personal touches of herself, from the ruffles that represent the preoperative curve of her spine to the green accessories that represent the honorary color of Scoliosis Awareness Month. After a semester of hard work, Gabbi walked down the runway at her school’s fashion show. In that definitive moment, she describes feeling powerful.

“Designing this dress went beyond my everyday love for fashion,” Gabbi says. “I felt like I was bringing light to something that is a struggle behind closed doors. It truly was a life-changing moment because I realized that my journey was not for nothing. I knew that night that this was truly an impact — not just for myself, but others.”

Today, Gabbi is looking forward to where the fashion design industry will take her. She shares that the care she received at Scottish Rite is paramount to building her self-confidence. “Scottish Rite means the world to me,” Gabbi says. “Not only did my care change a physical issue I had, but it changed my life. Scottish Rite helped me become the best version of myself.”

 Do you have a story? We want to hear it! Share your story with us.

5 Common Types of Scoliosis: Which Form Does Your Child Have?

5 Common Types of Scoliosis: Which Form Does Your Child Have?

by | Jun 4, 2025 | Scoliosis & Spine

Scoliosis is a common orthopedic condition that affects between 2% to 3% of the population. This abnormal sideways curvature of the spine can range from mild to severe, with varying health impacts. Scoliosis must be monitored until children stop growing, and moderate to severe curves will need corrective treatment. However, different types of scoliosis have different prognoses and may require different types of treatment.

What Is Scoliosis?

Prior to learning about the different forms of scoliosis, it helps to first understand what this condition is and how any form of the disease can affect a child.

Scoliosis happens when a child’s spine curves sideways. Normally, the spine is straight or has a slight S-curve when you look at it from the side — the top of a child’s back may curve out a little bit, and their lower back may curve in slightly. In children with scoliosis, the spine curves or twists in an S- or C-shape.

Mild cases may only limit a child’s flexibility, but severe cases can cause deformities and serious health problems, such as:

  • Arthritis
  • Back pain
  • Breathing problems or other lung issues
  • Heart problems
  • Paralysis
  • Problems walking, standing or doing other physical activities

Whether mild or severe, the form of scoliosis your child has can also play a role in its long-term impacts. Below are five common types of scoliosis.

Idiopathic Scoliosis

Idiopathic scoliosis, also called adolescent idiopathic scoliosis, is the most common type of scoliosis. It affects around 80% of children with scoliosis. It typically shows up at age 10 or later and has no known cause, although there is a genetic connection. About 30% of children with idiopathic scoliosis have a family history of scoliosis. Despite what many parents or kids may think, carrying a heavy backpack or slouching will not cause scoliosis.

Treatment for this type of scoliosis depends on the severity of your child’s spinal curve, defined as:

  • Mild, less than 20 degrees
  • Moderate, between 25 degrees and 40 degrees
  • Severe, greater than 50 degrees

Regardless of severity, many children with scoliosis benefit from physical therapy (PT). PT helps reduce pain and improve breathing, while also preventing a curve from getting worse.

Children with mild curves may simply need monitoring every six to 12 months to ensure a curve is not getting worse. Moderate curves may require a child to wear an orthotic back brace daily for months or even years.

Braces are usually successful in stopping the curve from progressing to a point of needing surgery. Severe curves or moderate curves that do not get better with bracing may require spinal surgery. Spinal fusion is the most common type of surgery for severe adolescent idiopathic scoliosis, but some patients may benefit from a newer technique, vertebral body tethering (VBT).

Congenital Scoliosis

Congenital scoliosis is a form of the condition that exists when a child is born. A rare birth defect, congenital scoliosis occurs in only 1 in 10,000 children. There are several different types of congenital scoliosis, each affecting how the spine curves abnormally in different ways. All can cause serious problems in children’s growth.

Many children with congenital scoliosis are not diagnosed until the problem becomes noticeable later in childhood or during the teenage years. Unlike idiopathic scoliosis, congenital scoliosis usually cannot be helped by bracing. Children with mild curves will still likely only need monitoring, but those with moderate to severe curves may need surgery.

Neuromuscular Scoliosis

Neuromuscular scoliosis is caused by medical conditions that impact the muscular or neurological systems. These conditions can affect a child’s muscle balance or how the body controls the muscles that support the spine.

Common neuromuscular conditions that lead to scoliosis include:

  • Cerebral palsy
  • Friedreich ataxia
  • Muscular dystrophy, especially Duchenne
  • Myelodysplasia
  • Spina bifida
  • Spinal muscle atrophy
  • Spinal trauma, especially that causing paralysis

These conditions may require children with scoliosis to be in wheelchairs. For those children, wheelchair seats can be modified to improve balance.

Bracing may also help many patients with neuromuscular scoliosis, but it will not stop the progression of curves. Surgery may be an option, depending on the underlying medical condition and other factors.

Early-Onset Scoliosis

Early-onset scoliosis develops before age 10. In most cases, early-onset scoliosis is idiopathic. Treatment is crucial for preventing breathing problems or deformities later in life.

Infants and children younger than age 2 who have early-onset scoliosis may need to wear a cast for two to three months at a time. In children this young, casting is often easier than bracing.

If a very young child’s scoliosis is severe, they may need a special type of surgery that involves attaching a magnetic rod to the spine. The rod can be lengthened as the child gets older, at which point they usually have spinal fusion surgery.

Syndromic Scoliosis

This type of scoliosis is very rare and develops as part of another condition, such as:

  • A connective tissue disorder, such as Marfan or Ehlers-Danlos syndrome
  • Beale’s syndrome
  • Down syndrome
  • Prader-Willi syndrome
  • Rett syndrome

Treatment options for syndromic scoliosis depend on the severity and the other health conditions involved.

Could Your Child Have Scoliosis?

Children are usually screened for scoliosis during their annual wellness exams, and they may be screened at other times, such as during school health screenings.

However, children grow quickly, so it’s important for parents to know the symptoms of scoliosis. Be on the lookout for signs such as:

  • Back pain
  • One shoulder blade that sticks out more than the other
  • One shoulder, hip bone or rib cage that seems higher than the other
  • Rounded shoulders
  • The sense that your child’s head is no longer directly centered above the pelvis
  • A sunken chest

Call your child’s pediatrician if your child experiences any of these symptoms or if you notice an unusual spinal curve when your child bends forward to touch their toes. Getting treatment early, no matter which type of scoliosis your child has, often leads to more successful outcomes.

If your child has been diagnosed with scoliosis, the Scottish Rite Center for Excellence in Spine is here to help. Schedule an appointment to discuss scoliosis care.

Scoliosis Awareness Month: What is Scoliosis?

Scoliosis Awareness Month: What is Scoliosis?

by | Jun 2, 2025 | Scoliosis & Spine

What is scoliosis?

Scoliosis is not a disease. It is an abnormal curvature of the spine. In addition to the spine curving sideways, it also twists, making the ribs (which are attached to the spine) look uneven. This may cause a prominence or a “bump” on the back. Other signs include a shoulder or hip that looks higher than the other or the chest may appear uneven. Scoliosis is usually a painless condition. Children with scoliosis are no more likely than kids without scoliosis to have back pain.

The diagnosis of scoliosis is confirmed by taking an X‐ray of the spine. If a curve measures more than 10 degrees, it is called scoliosis.

Who has it?

Scoliosis usually occurs in early adolescence and becomes more noticeable during a growth spurt. Approximately 0.5 percent of young people develop scoliosis that requires treatment. Girls have scoliosis eight times more often than boys. Sometimes scoliosis can be found in several family members, for several generations.

Why does it happen?

There are several different types of scoliosis that affect children.

Idiopathic Scoliosis
The most common type of scoliosis is idiopathic, which means the exact cause is not known. Idiopathic scoliosis can occur in infants, toddlers and young children, but the majority of cases occur from age 10 to the time a child is fully grown. Scoliosis tends to run in families. It is not a disease that is caught from someone else like a cold. There is nothing you could have done to prevent it. It is not caused by carrying heavy books, backpacks or purses, slouching, sleeping wrong or from a lack of calcium.

Congenital scoliosis
Congenital means that you are born with the condition. Congenital scoliosis starts at the spine forms very early in pregnancy. Part of one or more of the vertebra does not form completely, or the vertebra does not separate properly. Other abnormalities may also be present such as ribs may be missing or there can be ribs that are fused together. This type of scoliosis can be associated with other health issues including heart and kidney problems.

Neuromuscular scoliosis
Any medical condition that affects the muscles and the nerves can lead to scoliosis and this is known as neuromuscular scoliosis. This is most commonly due to muscle imbalance and/or weakness. Examples of neuromuscular conditions that can lead to scoliosis include cerebral palsy, spina bifida and muscular dystrophy.

How is it found?

Finding scoliosis is easy when the back is examined closely but it can be missed if someone isn’t looking for it. Parents or friends might notice the curve, but most curves are found through a school screening program or by a pediatrician. A trained examiner can detect even a slight curve when a person bends over to touch her or his toes. If a curve is suspected, a referral is often made to an orthopedic doctor. Print this PDF.

What may be noticed on someone who has scoliosis:
  1. One shoulder may be higher than the other.
  2. One scapula (shoulder blade) may be higher or more prominent than the other.
  3. When the arms hang loosely at the side of the body, there may be more space between the arm and the body on one side.
  4. One hip may appear to be higher than the other.
  5. The head may not be centered exactly over the pelvis.
  6. The waist may be flattened on one side; skin creases may be present on one side of the waist.
What are the types of curves?

Curves occur in the spine between the neck and the pelvis. They are named depending on their location. The most common type is in the upper back (thoracic) and tends to curve to the right. Other curves are in the lower (lumbar) spine. Many children have both types of curves.

How are curves treated?

Treatment depends on how big the curve is when it’s detected and how much growth is left. Curves can worsen during the major growth spurts. Curves less than 20 degrees may not need any treatment except to be checked by the doctor from time to time until the child has stopped growing.

If a child is still growing and the curve is greater than 20 degrees, the doctor might recommend wearing a brace. Bracing will not correct a curve. The goal of bracing is to help prevent the curve from getting worse during growth. Braces must be worn as prescribed by the doctor during the growing years in order to be effective. After growth is completed or if the curve does not respond to bracing, the brace is no longer worn.

If a curve is advanced, the doctor may suggest an operation to correct the scoliosis. Allowing a large curve to progress could interfere with heart and lung function in later years. The most common type of operation is called posterior spinal instrumentation and fusion. Instrumentation refers to metal rods and screws that are attached to the spine to hold it in the corrected position. Fusion refers to the bone graft that is placed along the spine making the vertebrae one solid piece.

Learn more about the importance of scoliosis screening.

News On 6: Tulsa Man Sells Mustang to Support Scottish Rite for Children

News On 6: Tulsa Man Sells Mustang to Support Scottish Rite for Children

by | May 16, 2025 | Press Coverage, Scoliosis & Spine

More than 50 years ago, Bryan Rowland was a patient at Scottish Rite for Children. Bryan was born with Klippel-Feil syndrome, a rare condition in which his vertebrae were fused together.

“Thankfully, my parents sought treatment through Scottish Rite, and I received corrective surgery as a toddler,” Bryan says. “They changed my life.”

Now, Bryan is giving up his beloved 1969 Ford Mustang to support the place he loves.

“It remains a magical place in my memories, a life-changing factory of fun for kids, in spite of physical challenges,” Bryan says. “Hopefully saying thank you by donating my prized car means more than just the two words.”

You can watch Bryan’s full story here.