Dec 03, 2019 / Scoliosis & Spine

Share Your Story: Beyond Our Expectations

Meet JJ, a patient seen by our multidisciplinary team of experts. Learn more about his journey from JJ's mom, Lisa, of Royse City, TX. 

How old was JJ the first time you came to Texas Scottish Rite Hospital for Children? 
He was 4 years old when he first began treatment at Scottish Rite Hospital. 

What is JJ’s condition?  
He was born with spina bifida, scoliosis, lung problems and Golden Har Syndrome.
How would you describe your overall experience at the hospital?
Our experience has been beyond our expectations – we have never been to a better hospital! From the moment we walked through the doors on our very first visit, the care we have received is more than we could ever imagine. 

No matter who you encounter, you can feel the love and compassion that the hospital is made of. Every single person we have come in contact with has been welcoming, caring and most of all passionate about giving us the best care we could hope for. 
We are blessed to have Dr. Ramo and nurse Marivel take care of JJ. Our entire family instantly fell in love with both of them. I feel like the level of care they give to him is like he is their own son. JJ loves Dr. Ramo so much that he even gave him the very first game ball that he received in baseball. Nurse Marivel will hold JJ’s hand through tough procedures to make him feel comfortable. You can’t get this kind of love just anywhere.
JJ has had several surgeries at Scottish Rite Hospital. Every time, Dr. Ramo keeps us updated throughout the progression of the surgery. This has been a blessing during those long, eight-hour procedures. Dr. Ramo is the best doctor that we could ever ask for.   
Following those surgeries, we would stay in the inpatient unit on the third floor. JJ always feels special and was even excited to be there. The third floor staff is amazing. The way they interact and play with the patients really makes you feel like you are part of a larger family. I honestly can’t say enough about the hospital and the amazing care they provide. 
Is there anything he is able to do now that he was not able to do before?
When JJ was born and throughout his baby years, we were told he may never walk or run. He never even crawled as a baby, so we were definitely worried. Now, after all of his treatments, surgeries and procedures, he can do almost everything he wants. He runs, jumps and even plays baseball. 



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